14th Annual Rett Syndrome Golf Tournament Being Held This Saturday, August 26th – HomeTown TV12
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14th Annual Rett Syndrome Golf Tournament Being Held This Saturday, August 26th

14th Annual Rett Syndrome Golf Tournament Being Held This Saturday, August 26th
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Forthton – The 14th Annual Rett Syndrome Golf Tournament is being held this Saturday, August 26th at the Cedar Valley Golf & Country Club on Forthton.

The fundraising event runs from 1:30pm to 5:00pm raising money for the “The Jessica Carr Rett Syndrome Research Fund” at CHEO.

Jessica Carr is 15 1/2 years old and lives with Rett Syndrome, a complex neurological disorder found almost exclusively in girls. Some symptoms of the syndrome are loss of speech, loss of motor and hand skills and physical disabilities.

Tournament Information:

Shot Gun Start: 1:30 p.m. – Best Ball

Early flight may be added if needed.

Dinner: 5:00 p.m.

Cost: for 9 holes of golf and steak or 1/2 chicken dinner

Non-Member $70.00

Cedar Valley Members $50.00

To Register – Call: 613-342-2158 or email rett@cedarvalleygolf.ca

http://www.cedarvalleygolf.ca

Rett Syndrome is a very rare disease, and Jessica has a very rare Rett Mutation, which has become very important to researchers. She has participated in four research projects in the past few years as her mutation is very valuable as a test control for many of these projects.

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